UK care services

This privacy notice sets out the data processing practices carried out through the activities of the UK care services of Leonard Cheshire.

The purposes of the services delivered by UK care are:

We support individuals to live, learn and work as independently as they choose, whatever their ability. Led by people with experience of disability, we are at the heart of local life — opening doors to opportunity, choice and support in communities around the globe.

We do this through delivering skills and confidence, volunteering and employment as well as managing all the organisation’s corporate and voluntary sector relationships and volunteers to deliver value for our customers and organisation.

If you have any requests concerning your personal information or any queries with regard to these practices, please contact the Information Governance Manager at

Where Leonard Cheshire is the controller or joint controller of your data, it will be used and held in accordance with the General Data Protection Regulation (GDPR) and the Data Protection Act (DPA) 2018. In some instances, we may be a processor of your data on behalf of a third party.

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How do you collect information about me?

The people we support are referred to us in a number of ways, and we need to collect personal and some special personal data in order to provide tailored and person-centred support. We collect information in the following ways via referrals to live in one of our services or stay for a short break:

  • Self-referrals from individuals
  • Referrals from parents or carers
  • Referrals from third party organisations, including the NHS, Local Health Boards, Local Authorities and joint commissioning groups
  • Referrals from partner organisations, housing associations, accessible housing registers, and other referral routes
  • Referrals from Leonard Cheshire care services and other Leonard Cheshire programmes

We will contact you and as many people who hold information about you as possible to gather information on your needs to ensure we can meet these in the best way. At the centre of what we do, however, is we to ask you what outcomes you would like to achieve and what goals and aspirations you have for life.

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What information we will collect about you and why

To enable us to provide effective support, we will collect, store and process personal data about you. This may be to meet our obligations under a contract to you and directly with a service commissioner.

Your personal information will include special category data, such as any health information you give us which is processed for health or social care purposes and based on Schedule 1, part 1, paragraph 2 of the DPA 2018.

We will ask for the following personal information:

  • Name
  • Address
  • Phone number
  • Email
  • Mobile number
  • Date of Birth
  • NI number
  • Gender
  • Marital status
  • Housing situation
  • If you have dependent children
  • What type of support you need
  • Benefits you are in receipt of
  • Other services and support you receive

We will also collect the following special category data:

  • The nature of your disability and any health and care needs including how your disability affects you on a daily basis and any accessibility requirements
  • Ethnic origin
  • Religion
  • Sexual orientation
  • We may need further information from you or other people to ensure we understand your needs for us to support you.

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How we will you use your personal information

We will use this information to complete a Person-Centred Care Plan (PCP) in order to assist support staff to understand how best to meet your needs. We will ask you to sign and agree a consent form to allow us to share your information with all relevant staff and professionals responsible for your care and support.

There is a legal requirement under the Health and Social Care Act 2008 in England and relevant legislation in other nations, for consent to be obtained for people’s care, treatment and support, including the support detailed in your PCP. Any proposed changes to this will be clearly discussed and agreed with you and consent obtained from you. We will keep a record of changes to your PCP.

We will obtain your consent unless there is any indication that you cannot provide this. In these circumstances we will:

  • Ask a legally appointed person (e.g. with Power of Attorney) who can consent on your behalf.
  • Where there is no legally appointed person, we will follow our policies and procedures relating to mental capacity.

If your capacity is known to fluctuate, we will gain consent from you when you are able to provide it. In periods when you are not able to consent and we need to review or change your care and support arrangements we will follow our policies and procedures relating to mental capacity and keep a record of this.

In some cases, where we believe there is a significant risk to your safety we may lawfully contact some, or all, of these professionals responsible for your care and support without your permission. This will only ever be done as a last resort and we will ordinarily tell you that we intend to do this before contacting them.

In circumstances where we may need to contact them without telling you first, this will only happen where, for example, we cannot find you or because you are too unwell, or we assess the risk of telling you as too high. This would be very rare, but it might occur if we feel telling you would significantly impact your mental health.

We will make sure that we keep your records secure, up to date, and will not keep any information for longer than is necessary, or that is not required for legitimate reasons.

Your information will be stored securely and kept in line with our retention and record keeping schedule.

You have rights in respect of the processing of your information which are explained in the main section of the privacy notice.

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How do I tell you about what information I am happy to receive from you?

As a member of one of our services we may occasionally send you information related to wider activities to give you the opportunity to support us through volunteering, campaigning or fundraising.

For specific details on how and why we use your personal data for marketing purposes, please read the full details.

We will seek your consent to receiving further communications from us and ask you to specify how you would like us to communicate with you. We will send you information according to the preferences that you have expressed.

If you would like to change your preferences or remove your personal details at any point, please email us at or call us on 030 0303 0074. Alternatively, you can write to us at Supporter Care team, Leonard Cheshire Disability, 66 South Lambeth Road, London SW8 1RL.