Martin's story — the state of social care in Great Britain in 2016

1 December 2016

As part of our social care campaign, we've spoken to disabled people across the UK about their experiences with social care. This is Martin's story.

 

by Martin Williams

I live at Leonard Cheshire Disability’s Danybryn service, where I receive great support for my disability, multiple sclerosis.

Despite the great care I receive at Danybryn, I would rather live closer to my family. But I can’t as there isn’t sufficient social care in the community to support me.

A father and stepfather to seven, and a grandfather to six lovely grandchildren, I was happily living with my wife until 2004.

Everything I need is provided at Danybryn. If I want to go out and do things I can, and I’m given as much or as little support as I need by the friendly staff there.

Martin: 'With the right care, I could live closer to my family.'With a great support network I have achieved remarkable things, like summiting both Mount Snowden and Ben Nevis.

I have tried to move three times but have repeatedly been told there is insufficient funding to provide me with care in the community, leaving me stuck living apart from my family.

I love the Leonard Cheshire service where I live, but ultimately, I’d much prefer to be supported to live closer to my family.

Join the campaign and find out the state of social care where you live.

Comments

Social care in this country is absolutely shocking due to years of under funding. I am only 60 but retired due to several health issues including being profoundly deaf now. I used to work for AgeUK but our funding was cut back again and again and we were expected to do more and more work because of local authority cut backs in social services. We were simply expected to 'take up the slack' but had to make staff redundancies and cut back on our services too. The lack of services for the elderly, disabled and vulnerable is now a national disgrace.

50 years ago my Aunt wasn't happy with the care her mother my grandmother was given so when she went home she spoke to her husband then they moved a bed in to her sitting room moved her family in to the large kitchen/diner packed her mums case and cared for her for approx 5 years, gran had a major stroke couldn't do anything for herself Is it perhaps the case that we expect somebody else to do all the caring if our parents can't manage. While we pop in for an hour a couple of times a week

I agree with the above I have 2 sons with a life limiting condition and long term disability. We have recently had our continuing health funding withdrawn, Our local hospice can only offer us 2 weekends per year due to demand. We access direct payments, home care and overnight homecare once a month. There does not seem to be a review mechanism for services other than the annual school review when not all staff involved bother to turn up to review the support my sons get. It is left with us as a family to flag up when we need extra support. The whole system is outcome driven and cash starved - where have the words duty of care gone and the responsibility for my sons welfare and safeguarding - oh yes that would be me as a sleep deprived undervalued carer?PA and not forgetting their Mom

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