Lee's story — the state of social care in Great Britain

8 November 2016

As part of our social care campaign, we've spoken to disabled people across the UK about their experiences with social care. This is Lee's story.


by Lee Eidson

I have complex learning difficulties. The social care which has enabled me to get out of the house and enjoy various activities for many years — as well as attend college — has recently been cut from five days to just three.

My behaviour could deteriorate if I don’t get the support I need and I am really worried I won’t be able to pursue my big passion — acting.

I really love going to the local centre and seeing my friends. My social life is really important to me and having my care package cut means I will have to stay at home a lot, making me feel really down and pent up.

No way to appeal decisions

With the help of my mum and dad, I’ve argued with the local authority about the decision, but there isn’t an independent appeals process, so there’s very little we can do about it.

This makes me feel angry. It’s unfair we don’t have the right to give our point of view or correct the things they’ve got wrong about what I can and can’t do when they made their decision.

Lee: I want to be taking centre stage, not stuck in my living roomI feel like I’ve had the rug pulled out from under my feet. I thought the support I was receiving was for life. I feel like it’s been changed unfairly and without warning.

My parents can’t afford to pay the cost of my support and we all feel like we’re in an impossible situation. It puts a lot of pressure on us as a family.

With the cuts to my support, I’m worried I won’t get to see my friends as much, which makes me feel frustrated and lonely.

With the right support I could live a much happier life and learn more things. I’d be better behaved and feel calmer.

I would also have friends and have the opportunity to speak to adults that I feel I can confide in. I would be really sad if I couldn’t see my girlfriend as much.

Join the campaign and find out the state of social care where you live.


Disgraceful state of affairs

Hi all,

My husband and myself have personal care at home, and have had for some years now.

Last month our care package went down from 33 hours per week to 13 hours per week, with no hope of ever getting the hours back. We where really shocked as we were told nothing until someone came and told us about the cut in our hours.

Both of us have conditions that will get no better, but they just don't care all they want to do is save money, but tell me why they would put in a £5,500 toilet in what a waste of money!

Thanks for reading my add,and good luck to all of you.


There is a right to appeal. People must do it themselves, in their own way. Lee needs to contact the local authority, often!

Find out who the team leader is and NAG!

That is what I have done and am doing now . . .

Thank you for your comment, Rosanne. We admire your tenacity, but it shouldn't have to be that way. We are campaigning for a true and independent right of appeal. Visit www.leonardcheshire.org/socialcare to join the campaign.

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