Julie's story — the state of social care in Great Britain in 2016
8 December 2016
As part of our social care campaign, we've spoken to disabled people across the UK about their experiences with social care. This is Julie's story.
by Julie Sharp
My name is Julie and I have Triple X syndrome. I was born with this condition although it was not actually diagnosed until I was 16. I am 30 now.
There is not much social care available for people with this condition because not a lot is known about it. As with all syndromes, each person can be at a different place on the spectrum.
I seem to be mostly affected by neurological issues and weak muscles, affecting my balance and coordination. It also affects how I understand the world around me.
I often feel very isolated because I have a very different understanding of the world compared to the other people I meet, and people often confuse me by not saying what they mean. You see, I am a very literal person.
Social care allows me to overcome barriers to assist me to achieve independence without parents having to look after me as they did when I was a child.
The emergency care provided by the local council has been cut due to funding cuts. I can’t access care when I need it the most.
Once, I was left for two weeks without sufficient care, and my health suffered as a result.
Until these cuts occurred, I was happy with the care I was getting, which was helping me to remain independent.
With good quality emergency care, I could live the life I’d like, without having to worry about being stuck without help.
Join the campaign and find out the state of social care where you live.