Joan's story — the state of social care in Great Britain
16 November 2016
As part of our social care campaign, we've spoken to disabled people across the UK about their experiences with social care. This is Joan's story.
by Joan Searle
I live in a beautiful part of the country by the sea, and love my busy life. But living alone with the spinal condition I have is hard.
Despite the wonderful personal assistants I have who visit me from my care support provider, I still struggle to get in and out of bed and wash myself without help.
My council has been providing me with care at home for almost 30 years, but I don’t get a choice about what time a carer visits in the evening to help me get ready for bed.
It sometimes takes a long time to get ready, leaving me exhausted. At the moment I can just about manage, but soon I’ll need the help and will have to sacrifice my independence because this is the only bedtime support option available to me.
It is frustrating to think that soon I’ll have no choice about when I go to bed so I’m trying to hang on to my independence for as long as possible.
I love gardening, and take part in a garden project in a local school. I also run a craft club and lead a very active social life at the moment. I’d be really sad to have to let this go.
In an ideal situation, my bedtime care would be flexible: a carer would come in when I want them to and I would have the chance to change the call time. This would mean I could get the support I need and still live my life the way I choose.
Join the campaign and find out the state of social care where you live.